I had the neurologist in stitches. He laughed out loud at the ridiculous things they said to me. I love this neurologist, soft spoken but blunt. A nurse walked me in to the small office to get my vitals before he came in. I've gained some weight. I'm back up to a reasonable skinny weight,…
Wait a Minute – EEG Update
I received the call I was waiting for from the Neurology Department. It should have been what I expected. She said, the hospital has had "problems in the past" placing the leads in specific places on a patient with dreadlocks therefore I was asked to completely untwist my entire head of hair to be measured…
Wait a minute
"Patients with dreadlocks can't have EEG's" said central scheduling. WTF Try again without seeing my head. I just took pictures of the top of my head and sent it via text to the poor neurology dept. secretary who got a not too friendly transferred call from me. "I'm not shaving my head for an EEG."…
Obviously, I don’t get it.
He puts his head down as I talk He never responds when I ask questions Obviously, my questions hurt him His soul is a one celled organism Speaking to no one hearing only attack, slight, and complaints. I want to know because I don't understand. I do not want or intend to hurt him. Getting…
Five appointments
My case worker came to pick me up yesterday She is becoming more human less stiff and more compassionate now that she gets it, my chaos is constant. With Bear's hospitalization 60 miles away with no actual date of release, my drop and twitch moments and my drop moments coming more and more frequently No…
The Falling Season
I'm not a clutz but I look like one recently I have been falling a lot. My culprit is my back spasms that come out of nowhere they are triggered by movement strain, walking, sitting while sleeping or waking. My favorite spasms are the screaming spasms that remind me of my brother's charlie horses when…
Note to Self
Do not find things to do in the middle of the night to fight insomnia. The basement is a dangerous place for you- you budding pyromaniac. Those boxes of old patterns are extremely flammable. Cleaning with fire is a bit drastic. Water is not enough when they spill flaming from the wood burning stove. Asbestos…
And yet
I never write in the evenings, and yet here I am, sitting on the couch wondering what has happened and whether I should get my Happy light out and turn it on. I forgot, it's that time of year when the sunlight reduces and I get SAD. I did go to the second acupuncture visit…
I had something else I wanted to say
but once again, the brain took over and hijacked the morning. The dreams nightmared in my skull until I woke up hearing a knocking at the door. WOOOODPECKERS! PSYCHOTIC OCD BIRDS DRILLING FOR GRUBS They knock with the intensity of the police during a drug raid,(my neighbors were dealers, so this I know with certainty.)…
My Eldest Surly Reverie
So, he walked to his grandmother's house with his tail between his legs. Not really, he rolled his bike with most of his bags on his back with righteous indignation to her house livid that I had dared to push my will upon him. My seventeen year old man child seems to be cycling bi-polar.…
Amanuensis Sobriquet-Reverie 